Tourette Scotland
formerly known as The Scottish Tourette Syndrome Support Group
CONTACTS |
Tourette Scotland
Real Change
50-52 Princes Street
PERTH
PH2 8LJ
Telephone: 01738 622008
Chairperson - Janice Mylan
Secretary Sue Ross
The
Support Group:
Provides advice and support for sufferers and their families. |
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Brings together individuals suffering from TS and associated disorders in
order to share information. |
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Produces newsletters, advice sheets and leaflets. |
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Raises awareness amongst public and professionals in Scotland. |
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Provides a telephone helpline for information and support. |
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Arranges informal meetings biannually with guest speakers. |
TOURETTE SYNDROME:
Is
named after the doctor who first identified it in 1825. |
|
Is
an hereditary, genetic illness caused by chemicals not working properly in a small area of
the brain. |
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Mainly
affects boys. Thought to be at least 1 in 2000. |
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Is
not contagious. |
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Does
not mean you are stupid or disabled. |
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Sufferers
are often misunderstood or rejected. |
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Has
no known cure
but research
continues. |
People
who have TS can sometimes have no control over:
Making noises like grunting, coughing or barking. |
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Twitching their faces, eyes, nose or mouth. |
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Nodding or jerking their head, neck or limbs. |
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Having bad temper outbursts. |
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Saying things that sound wrong, rude or unpleasant. |
Doctors have tried to explain how it must feel to have TS:
Do not allow yourself to scratch any part of your body for the next hour. |
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This is how impossible it is thought to be for TS sufferers to control or stop their noise or twitches. |
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Not easy, is it? |